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~kelbora

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I've gone 20 years without knowing...

Mon May 12, 2008, 4:21 PM
  • Mood: Anguish
  • Listening to: "Nemo" By Nightwish
  • Reading: "The Host" by Stephanie Meyer
  • Watching: The News
  • Playing: Valkyre Profile" Salmeria
  • Eating: Nothing
  • Drinking: Cup of Coffee
So, as some of you might already know...I was, and still kinda am, going through a medical crisis. After a mysterious shut down of certain natural female functions within my body, I was rushed off to an emergency GYN visit (probably the most humiliating series of events I've ever endured) and put through everything from a 15 vile blood test, to an ultra sound, to some highly uncomfortable visual examinations...Results:

I have a blood disease that I never knew existed.

How could someone go 20 years (almost 21) of life and NOT even have the slightest clue that their blood was diseased? HELL! I've donated blood before and have never had a problem, and now I find out that my recent blood tests were positive for a rare genetic blood disorder? WHAT THE HELL IS UP WITH THAT?!

Apparently my body is at higher risk then most people for blood clotting, but what makes my case unique is that major blood clots can be triggered by sudden rises with the hormones in my body. Meaning that too much of this or that makes thrombocytes build up in my blood that could potentially be fatal. Who knew that my periods or trying to have a kid could kill me someday? Anyway, that's the best hypothesis they have thus far as to why my female functions are suddenly shutting down. However, they are sending me to a Hemotologist (Blood doctor) and a GYN Pathologist (Female disease doctor) to see if there are any treatments for it or theropies...As of right now though my worst fears have not come true (that I would have cancer or be unable to concieve children), but because of this disease my chances of either are still higher than most. One thing that is for sure...that if I do get pregnet some day...my chances of a miscarriage or pregnecy blood clots escalate exponentially. This...has me a tad more depressed than usual...

But at least the chance for kids is still there and I don't have cancer as of right now.

*sighs* I know I owe people stuff, and I am working on it, but I beg for patients right now so I can deal with this crisis and either get on the road to treatment (since there is no cure for genetic diseases) or start learning what my options are. Thanks for the understandings...and c-ya around.

With all my love,
Kel

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23 Comments

Devious Comments

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=SilverEmerald-DAS:iconSilverEmerald-DAS: May 12, 2008, 10:31:44 PM
Oh geez, Kel honey. :(

I'm glad you're at least okay. :hug: I hope there are options for treatment that can overcome the worst of this, and I send you my prayers, my love, and all the good luck the world can give you. <3

:heart:

--
Volatile Kitsune is Volatile
8D - D8
~ Blunt, opinionated and slightly unhinged. What you see is what you get. ~
~sesshysshewolf:iconsesshysshewolf: May 12, 2008, 11:20:29 PM
Well, I'm just really grateful that you're alright, and that nothing major happened before you knew and were prepared!

But whatever might happen in the future, you know we'll always be there for you, Kel-hun. We love you. <3

Now gimme some good ol' Kelly-lovin'! *SQUEEGLOMP*

--
Long ago, in a penis-shaped state far, far away...
~sesshysshewolf: Ohmahgawd. Holy shit, that was possum. I THINK I JUST KILLED A POSSUM, SENPAI.
~AcidConfetti: ...Score!! I needed one of those! 8D
~Listy:iconListy: May 13, 2008, 6:02:37 AM
I had no idea this was going on! *hugs tight* Now I'm worried. Let me know what you find out! I'll be praying for you! *huggles*
~kelbora:iconkelbora: May 13, 2008, 7:39:53 AM
...Thanks...*hugs and slumps* Man, why the hell does stuff like this happen to me? Honestly...what kind of f'ed up individual was I in another life? *sigh*

--
" Life is not waiting for the storm to pass; it is learning to dance in the rain."
~kelbora:iconkelbora: May 13, 2008, 7:42:03 AM
*sighs and lowers ears* Man, this really sucks though...I wanna have kids someday, and I wanna go through the "wonders of pregnecy" just once if its the only chance I get. *whimpers* What kind of f-'ed up individual was I in another life?! =>_<= Or what in this one did I do to deserve this?!!!

*flinch-twitch*...You spelled my name wrong...=o_O=

--
" Life is not waiting for the storm to pass; it is learning to dance in the rain."
~kelbora:iconkelbora: May 13, 2008, 7:45:18 AM
Thanks sweets, *huggles* Prayers are probably the only thing that're gonna make this situation better. No matter what treatments they give me, its gonna make me emotionally unstable because of elevated hormone levels of specific chemicals. =@___@= Goodness, PMS without the period! NOOOOOOOOOOOOOOOO!!!! =T____T=

*huggles* Thanks for the kind words.

--
" Life is not waiting for the storm to pass; it is learning to dance in the rain."
~Listy:iconListy: May 13, 2008, 8:14:41 AM
I feel the same way, with all my health crap. Just keep your chin up and pray. It'll all be okay. I know it will. *hugs*
~Jinta:iconJinta: May 13, 2008, 8:53:40 AM
Ugh. These things always seem to fall through the cracks all the time. I think they just didn't think of testing your blood for disorders when you gave blood. Maybe they were lazy. O.O Who knows. Do you know what's the name of the blood disorder? If you don't mind me asking.

Just hang in there girl.
Try to think positive. Our minds are very powerful. We can easily convince ourselves that everything is fine but yet it's not and your body reacts to the positive mind sate. Sounds so crony but it's true. I've done it myself when things went bad in my life. But you already knew that didn't you? :-P

--
*Unable to think of anything smart to say*
~kelbora:iconkelbora: May 13, 2008, 12:05:48 PM
X3 Yus dear, I did take psychology too, LOL! *sighs* Yeah, I really wish I'd have known this sooner...but oh well, I can't change my genetics. And no, I don't know the name of the disease, well the official name at least...They said that since the abnormality was discovered by the GYN office, that only a registared Hemotologist could properly diagnose the disorder and perscribe treatments. But when I find out what they call this ting, I'll let ya know.

*hugs* Thanks.

--
" Life is not waiting for the storm to pass; it is learning to dance in the rain."
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